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It happened in January of 1996. Brain injury turned my
life upside-down. Outwardly little changed, but
inwardly,
everything did.
Step inside and see...
All in Your Head
The skeptic said,
You look fine,
So you are fine.
The problems are all in your head.
My husband said,
I love you, but
You're not who you used to be.
My daughter said,
You're no fun any more.
I want to run away.
I said,
Please help me.
I'm lost, confused.
My head hurts.
I can't remember,
Can't think clearly,
Loud noises bother me.
I lose control, I rage,
Become distracted,
Am always tired.
Learning comes slowly now.
I've lost myself
And I'm so ashamed.
Help me, please,
With these problems in my head.
The doctor said,
The changes are real.
They won't go away.
So sorry your head can't be fixed.
But here are
Pills to sleep
Pills to stay awake
Pills to improve memory
Pills to prevent seizures
Pills to control mood swings
Pills to dull the pain
From the problems that are in your head.
The skeptic said,
You look fine
So you are fine.
The problems are all in your head.
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My
husband has a new wife
My
daughter, a new mother.
And
sometimes I think I hate
The
stranger who has taken my place.
It’s
painful just to watch her
Do
what I once did.
She
cooks (a little), cleans (not well),
And
dreams her little dreams.
But
where is the laughter, the passion,
The
two of us used to know?
Where,
the bright hopes and the wonder
That
bound us, heart and soul?
And
yet my husband loves her
(I
wonder how he can)
A
person slow and awkward,
Limited
and sad.
The
accident that brought her
Saw
the old me die
Left
this strange new person
To
carry on in my stead.
Now
my daughter calls her Mommy,
And
trusting takes her hand.
My
husband calls her Dearest
And
draws her into his arms.
But
deep within me something
Remembers
and protests,
I
refuse, I will not be
This
stranger who has taken my place!
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Let
us touch the wound,
The
doubters say,
And
then we can believe.
Let
us feel the holes,
The
doubters say,
And
your agony we will know.
But
the wound only shows as
Squiggles
on an EEG,
Spaces
on an MRI.
And
the holes are but
Tiny
tears in my brain
And
my being.
What
I have lost -
Memory,
clarity, skill -
Can
not be seen.
What
I have gained -
Frustration,
fear, and shame -
Can
not be touched.
Bless
you then
For
believing.
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So-and-so is so clever
So-and-so is so bright
So-and-so has such
passion,
Energy, fire, and drive!
Echoes of my mother
Echoes of my fear
I am not So-and-So
Wasn’t and never will be.
Comparisons always hurt me
Even as they made me mad
I wanted to shout, Accept ME!
This is who I am.
But now I am my mother
Comparing me to myself
Before I was this
And did such and such.
Today I’m not so clever
The brightness within me has dimmed
The passion that blazed now smolders
And lethargy presses me down.
So how can I accept me
When this is who I am?
Who chooses shadow, distorted and thin,
Over substance?
Must I hate that former me
The self alive with joy and laughter
Rich in abilities and capabilities
That this me can not touch?
Comparisons belittle
So I belittle myself
But how can I leave off grieving
When
I am what I’ve lost?
Treat me gently, Mother
Your child is hurting enough
I need your tears for healing
Your welcome to help me make peace.
And you, Self, treat me gently,
For I am all you’ve got
So maddeningly imperfect,
Yet
yearning to be loved.
Don’t compare, don’t turn away,
And please do not condemn.
This is who I am, now.
Accept me.
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The universe inside my head
Is rich with stars
But also, here and there
-
swallowing light
-
black holes.
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Before my daughter started school, we watched a lot of Winnie the Pooh tapes together.
I remember one episode in particular in which Tigger somehow loses his
characteristic stripes. None of his
friends recognize this new stripeless
Tigger.
But if he isn’t Tigger, then who is he?
No one
-
Tigger included
-
seems to know.
Despair grows until Tigger encounters Pooh, who recognizes him at once.
When Tigger demands to know how Pooh can be sure, the bear replies
matter-of-factly, “You’re still Tigger on the inside!”
Enormously relieved, Tigger gives a victory dance.
Now even his stripes start to reappear.
Lucky Tigger.
I empathize with him, because I too wrestle with
self-doubt.
In my case, the identity crisis was triggered by a head injury, which in
subtle and not so subtle ways altered how I think, remember,
even feel.
Unfortunately, my changes
are
on the inside. And, unlike
Tigger’s stripes, my old abilities won’t magically reappear one
morning.
So this
is
me now, and I must
-
however reluctantly
-
reach an accommodation with this new-old self.
I wish the changes gone. But they
are there, and I must absorb them.
Accept them as me. How else can I
learn strategies for coping with deficiencies?
How else learn to play to my strengths and not to my weaknesses?
How else plan? How else find any peace?
So I go to rehab and I probe. I
sift, sort, count, add, build, react, scan, type, memorize, and problem-solve.
I take notes and set timers.
I fail. I withdraw in grief, anger,
frustration, self-pity. Then,
because I must, I try again.
Building skill and rebuilding a sense of self.
Because I will make peace with this new-old me.
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